Finally Being Told It's Not All In Your Head (After 10 years...)

I have grown up spending my summers in Fire Island, NY, one of the most beautiful places but the deer over populate the people.  I started having my first symptom in 2004, age 21.  Almost 10 years of dozens of specialists, every year would be another symptom another "diagnosis."  and another prescription med that I would have to take which of course never helped.  This past year I went to the ER twice when finally I decided to see a  good friend of mine who works for a cardiologist.  She ran every test she possibly could.  She was alarmed that my ELISA test came back positive, but western blot came back negative.  Most Lyme illiterate doctors unfortunately rule Lyme as a diagnosis out if the western blot comes back negative, so that has been my case for over 10 years.  I was not going to the "right" doctors.  My friend then prompted me to go to a LLMD (Lyme Literate Doctor).  While waiting for my appointment I went to my Primary, who at this point in our appointments had stopped looking me in the eye when I came to her with symptoms and would just hand me referrals to psychiatrists.  I told her that I think I have Lyme and Id like to be tested, she immediately said that I probably don't have it and that the treatment is so severe I don't want to bother.  Unbelievable right?!?! Not even going to waste the time expressing the frustration I felt after that appointment, but needless to say I haven't gone back to her.  Eventually when I saw my LLMD, I went to three different labs to gets get blood drawn AND had a culture done in a different state (not legal in NY), the culture grew in a week and a half, pretty evident I have it!!! I have been on both oral and IV, now I am just on IV and herbal supplements.  So this is my story so far…

oh and I did call my primary up, I told her my lyme test came back positive and she said she wanted me to come in immediately.   To that I said, "Oh no, you don't understand, I will NEVER be coming back."