I am a face for this disease that is so unknown.
Yes
I have late stage neurological Lyme.
Yes everyday is a battle.
Yes I
get angry.
Yes it hurts.
Yes I grieve.
Yes I feel left behind.
Yes
it's a prison.
Yes I can't just escape.
Yes it's scary. Yes it feels
that it may never end.
I say I feel "stuck"
every day of my life.... I am not getting better, I am getting worse.
What I have to do is be patient and trust my doctor... but in the mean
time I am getting sick with infections upon infections and its breaking
me down, its breaking my spirit down.
What do you do when all hope is lost?
I do not want sympathy nor do I want help, Getting
sympathy just makes me feel worse and when asked for help I just get
frustrated. To be honest no one can help me right now. Only my dr. and he is even struggling with figuring out the right treatment for me.
